I talked about my daughter’s disabilities, her upcoming cleft palate repair surgery this Wednesday, and what God has been teaching me through her. Just for a few minutes. It was part testimony and part exhortation. Audio is here. While I … Continue reading
Hard to believe that it was just over ten years ago that I attended the first ward event of the 2002-2003 school year for my Heritage Halls ward at Brigham Young University. I felt a pang of disappointment as I … Continue reading
Today marks the return of two things that I haven’t done since January: (1) Write a blog post, and (2) visit my husband’s ward. My visit to the ward was pleasant. My daughter genuinely seemed to be enjoying herself—she informed … Continue reading
Some searches that landed on my site today: “quinn bradlee retarded” Quinn Bradlee is the son of Benjamin C. Bradlee, the vice-president of The Washington Post, and journalist Sally Quinn. He has velo-cardio-facial syndrome aka 22q11.2 deletion syndrome, the same … Continue reading
A while ago I heard about a documentary on velo-cardio-facial syndrome that was being made by Quinn Bradlee, the son of Washington Post vice-president Benjamin C. Bradlee and journalist Sally Quinn. Quinn Bradlee was diagnosed with VCFS in his teens … Continue reading
Absolutely disgusting. From an objectivist thinker named Nicholas Provenzo: Like many, I am troubled by the implications of Alaska governor and Republican Vice Presidential candidate Sarah Palin’s decision to knowingly give birth to a child disabled with Down syndrome. Given … Continue reading
It’s always fun trying to explain my daughter’s disability to strangers. I’ll usually start with, “My daughter has a rare genetic disorder,” to which they’ll reply, “What’s it called?” And then I take a deep breath and say, “It’s called … Continue reading
As discussed in my prior post about my daughter, Harley was one of the many babies with Velo-Cardio-Facial Syndrome who was born with a cleft palate. This meant feeding issues as well as at least one surgery needed. From the … Continue reading
Meet my daughter, Harley. The picture on the left was taken a few minutes after she was born on June 28, 2006, when Harley was 19.5″ long and weighed 7 lbs. 4 oz. The picture on the right was taken … Continue reading
Rejected by her 23 year-old birth mother (a drug addict) and a 48 year-old adoptive mother who could not handle raising a child with her medical problems, a baby with DiGeorge sequence (aka VCFS) is adopted by a hospital staffer … Continue reading