This is a series of posts about my daughter, who was diagnosed from birth with velo-cardio-facial syndrome aka 22q11.2 deletion syndrome, sometimes mistakenly referred to as DiGeorge syndrome. See below for an in-depth post on terminology.

These posts are intended to be a resource for parents who may have a new diagnosis of VCFS in the family or are just looking to hear someone else’s story.

22Q11 Deletion Terminology: A Parent’s View
Harley’s Story
Harley’s Journey: Cleft Palate Troubles