Some searches that landed on my site today:
“quinn bradlee retarded”
Quinn Bradlee is the son of Benjamin C. Bradlee, the vice-president of The Washington Post, and journalist Sally Quinn. He has velo-cardio-facial syndrome aka 22q11.2 deletion syndrome, the same disorder my own daughter has.
Dear morons: people with VCFS are not “retarded,” and Quinn Bradlee certainly isn’t, [...]

It’s always fun trying to explain my daughter’s disability to strangers. I’ll usually start with, “My daughter has a rare genetic disorder,” to which they’ll reply, “What’s it called?” And then I take a deep breath and say, “It’s called velo-cardio-facial syndrome.”
Them: “Huh?”
Me: “Also known as 22q11 deletion syndrome.”
Them: “Still haven’t heard of it.”
Me: “Sometimes [...]

As discussed in my prior post about my daughter, Harley was one of the many babies with Velo-Cardio-Facial Syndrome who was born with a cleft palate. This meant feeding issues as well as at least one surgery needed.
From the time Harley was born, feeding was a problem. I was quickly informed that a baby with [...]

Meet my daughter, Harley. The picture on the left was taken a few minutes after she was born on June 28, 2006, when Harley was 19.5″ long and weighed 7 lbs. 4 oz. The picture on the right was taken a few days ago. Harley is now two years old, 36″ tall and weighs 30 [...]

Rejected by her 23 year-old birth mother (a drug addict) and a 48 year-old adoptive mother who could not handle raising a child with her medical problems, a baby with DiGeorge sequence (aka VCFS) is adopted by a hospital staffer and his wife.

Welcome to the ClobberBlog, home of the musings of Bridget Jack Meyers. I sometimes post comments on other forums and blogs under the handle “ClobberGirl,” which comes from an episode of the Simpsons, hence the name. I’m no one special, but these days you really don’t have to be anyone special to have a blog [...]